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The Elwood Booster Club is posting this in response to a request made by a fellow community member. If you prefer to avoid a fee, we will accept and disperse donations on behalf of Hayley Eno. Please make checks payable to "Eno Family" and mail to 8 Fair Oaks Ct., East Northport, NY 11731.
After a long battle of chronic illness (see old post below) and a successful liver transplant, Hayley Rose has now been diagnosed with a form of Lymphoma triggered by the immunosuppressant drugs that she has been taking for her liver transplant. Her father has been battling brain cancer and her mother is a breast cancer survivor. They need your help. Please help us help this family.
Hayley was diagnosed with Primary Sclerosing Cholangitis (PSC) and Ulcerative Colitis in February 2016 at the age of 15. PSC is a rare chronic disease that slowly damages the bile ducts. Ulcerative colitis is an inflammatory bowel disease. A majority of people with PSC also have either ulcerative colitis or Crohn's disease.
In PSC, inflammation of the bile ducts leads to scar formation and narrowing of the ducts over time. As scarring increases, the ducts become blocked. As a result, bile builds up in the liver and damages liver cells. Eventually, scar tissue can spread throughout the liver, causing cirrhosis and liver failure.
Hayley's illness was not discovered during any routine blood work. Her routine physicals did not consist of blood work. Although she complained of severe back pain and was always so tired, she did not have one of the classic symptoms of PSC - jaundice, a yellowing of the skin and eyes. Her diagnosis went undetected until she was hospitalized on an emergency basis, vomiting blood. That is when we learned that she was suffering from Portal Hypertension, a life threatening complication from cirrhosis of the liver.
Hayley has been in and out of hospitals every month and continues to live in extreme pain. This family has been through so much. Her father is living with brain cancer and is unable to work. Her Mom, a breast cancer survivor, has not been able to go back to work because of the constant care that Hayley needs.
Many of Hayley's treatments and medications are not covered by their insurance and they are often seeking alternative treatment options. Hayley is in the process of being approved to be put onto the transplant list.